We are partnering

to build a better tomorrow for Prader-Willi Syndrome

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Stronger together

PWS Stronger Together is a collaboration between the two charities: The Foundation for Prader-Willi Research UK and Prader-Willi Syndrome Association UK. United in our mission to push research and development forward, driving positive change for the PWS community in the UK and beyond. While both organisations maintain independent operations, they join forces for this initiative.


We know that by working together our two organisations will be able to achieve more. We want to ensure the effective use of limited resources to further knowledge and understanding of PWS and support all those impacted by PWS in the UK. 

Donations made through PWS Stronger Togerther will be split equally between FPWR UK and PWSA UK.

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Our mission is to eliminate the challenges of Prader-Willi Syndrome through research and therapeutic development.

Each organisation brings its specialist expertise to this initiative. Stay connected by registering for updates directly with each  organisation to learn more about our incredible work.

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Our mission is to ensure every member of the PWS community has access to high quality care, opportunity and support, and to promote awareness, build knowledge and further research in order to overcome the challenges of PWS.

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Collaborate to ensure the best possible outcomes

Prader-Willi Syndrome (PWS) is a rare genetic condition causing an overwhelming and uncontrollable drive to eat that can be life-limiting, as well as learning and physical disabilities. 


Rare conditions are little understood and often underfunded both in terms of support services and research to find effective medication and treatment. Support for research, translating research into practice and supporting families with each step of the PWS journey requires joined-up thinking and effective use of limited resources.


FPWR UK is dedicated to raising funds for vital research for PWS.  PWSA UK is a membership organisation focused on providing information and services to support people with PWS. 


Working together allows us to combine our complementary strengths and expertise to reach a wider audience and deal with the complex issues faced by the PWS community approach.