Get involved with Awareness Month 2025

Last year you helped us raise over £14,000 for research into Ageing in PWS.

This year we are encouraging you to move any way you can for 15 minutes everyday in May.

Why 15?

Prader-Willi Syndrome is linked to missing or inactive genes on chromosome 15.

What's the plan?

We will have videos showing you how to do 3 different types of exercise at two difficulty levels. You can pick which ones you would like to do, and of course you can choose your own movements.

Keep an eye out to see who is recording the videos for us!

How you can get involved

We are asking schools, nurseries, supported living and residential settings to take part in Move It May 2025.

You can still donate to help fund research on Ageing in PWS, helping those living with this condition lead better lives.

Your generosity helps

YOUR GENEROSITY HELPS

Text to donate

Text PWSTOGETHER to 70470 followed by the amount you would like to donate. e.g PWSTOGETHER10 for £10 or PWSTOGETHER20 for £20. 

Texts will cost the donation amount plus one standard network rate message, and you'll be opting into hearing more from us.

If you would like to donate but don't wish to hear more from us, please text PWSTOGETHERNOINFO followed by the amount you wish to donate.

Your generosity helps

Fundraise

You can create a campaign page on GiveStar, which allows you to create a fundraising page to fundraise for PWSA UK and FPWR UK.

GiveStar is available online via the link below or as an app, which can be downloaded on Android and iOS.

See what we did in 2024!